Left or right? Summer flower question.
Lupus Community Gather for the First Congressional Lupus Caucus
Last week, members of the lupus community gathered in Washington, DC for the first Congressional briefing on lupus. The meeting of the Congressional Lupus Caucus gave those attending a chance to share their personal stories and tospeak about why supporting lupus research and considering future policy is vital for advancing treatments and ultimately finding a cure for lupus.
Karen Geisenheimer Morris attended with the Alliance for Lupus Research (ALR) and says, “It was an honor and privilege to speak to Congress on behalf of the ALR and themillions of people who share my struggles and frustrations with this terribledisease. It was very encouraging to see the large number of Congressional attendees and their enthusiastic response to our meeting. While this has been a rough road, it is important for us to get the word out there.”
Click the picture of Karen speaking to the Congressional Lupus Caucus for the full story.
Here’s the story about me and my niece and celebrating her birthday in New York City!
Have you seen Mack the Molecule’s video about our virtual walk? Watch it and see how you can “get in on it.”
Summer is the right time to plan and start thinking about your virtual walk team and event. You don’t have to wait… create an event and build your team today. While gathering with your friends and family over the Fourth of July, get them to join your team.
While applying your sunscreen before getting in the pool, talk about why you are getting in on it with a virtual walk (or event). Now is the time to get creative and have fun. You may choose to “Strike Out Lupus” with a bowling or baseball themed event or walk around a local park or landmark, hosting an open house works too. The details are up to you. Remember that 100% of every dollar raised through each virtual walk goes directly to fund lupus research programs.