Mack the Molecule explains “What are T cells?” in this short video found in our newly created Lupus Glossary. .
Love learning about lupus with Mack!
How do we find and sharing meaning in the “State of Now” ~ here’s my story about the night before the #140conf12
Lupus Community Gather for the First Congressional Lupus Caucus
Last week, members of the lupus community gathered in Washington, DC for the first Congressional briefing on lupus. The meeting of the Congressional Lupus Caucus gave those attending a chance to share their personal stories and tospeak about why supporting lupus research and considering future policy is vital for advancing treatments and ultimately finding a cure for lupus.
Karen Geisenheimer Morris attended with the Alliance for Lupus Research (ALR) and says, “It was an honor and privilege to speak to Congress on behalf of the ALR and themillions of people who share my struggles and frustrations with this terribledisease. It was very encouraging to see the large number of Congressional attendees and their enthusiastic response to our meeting. While this has been a rough road, it is important for us to get the word out there.”
Click the picture of Karen speaking to the Congressional Lupus Caucus for the full story.
Have you seen Mack the Molecule’s video about our virtual walk? Watch it and see how you can “get in on it.”
Summer is the right time to plan and start thinking about your virtual walk team and event. You don’t have to wait… create an event and build your team today. While gathering with your friends and family over the Fourth of July, get them to join your team.
While applying your sunscreen before getting in the pool, talk about why you are getting in on it with a virtual walk (or event). Now is the time to get creative and have fun. You may choose to “Strike Out Lupus” with a bowling or baseball themed event or walk around a local park or landmark, hosting an open house works too. The details are up to you. Remember that 100% of every dollar raised through each virtual walk goes directly to fund lupus research programs.
Having Lupus means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most people do not understand even a little about Lupus and its effects, and of those that think they know, many are… actually mis-informed. In the spirit of informing those…
We had a busy and fun Lupus Awareness Month 2012. From Collaborating for a Cure on World Lupus Day to our “Walk with Us to Cure Lupus” Walk events across the country, we hope you enjoy the video!
